I have been in the hospital for 5 days now. On Saturday, I was taken to the emergency room after feeling weak and not being able to swallow food or water, and was diagnosed with mucositis ( the painful swelling and blistering of the mucous membranes that coat the digestive tract, a common side effect of chemotherapy). I am in severe pain. This is my 3rd trip to hospital in 2 weeks. I am so dehydrated that I can barely stand for more that a few minutes without getting dizzy. It is difficult to talk, my speech is slurred, and I’ve been told that I hardly sound like myself. My face is puffy and red. I can’t really open my mouth, let alone swallow my own spit. Instead, a suction wand (like the kind they use at the dentist) drains my mouth and all the spit goes into a little bucket at the side of my bed. I like watching the spit level rise. Right now it’s at 350 mL. The only thing I am eating or drinking is popsicles. I just hold them up to my mouth and let them melt away as they numb my gums. The pain in my mouth and throat is partially being controlled by morphine—lots of morphine. I am on a continuous morphine drip and in addition, I have a special button near my bed that allows me to add a little boost of extra morphine every 10 minutes for when I really need it. Every so often, when I reach over to press the button to increase my morphine intake, I recall a specific memory of my friend Linzey, the one with a brain tumor, who I have mentioned before in a previous post.
Never in my life had I seen anyone in that state. There she lay, motionless, eyes fixed on the television. I noticed that she had gained weight; her petite body was now heavy. The circles under her eyes had never been this dark. Her breathing was heavy, and it was clear that she had never been this weak in her life. When she finally noticed my presence, I tried talking to her, but I realized that she was too weak to respond. I found myself telling her things, to deflect my real thoughts. Occasionally her head slightly nodded in response to certain things I told her. Suddenly, I saw her struggling to get a groaning sound to come from her mouth. I was in the room alone with her. Fear struck me, and I was unable to move. It was obvious that she needed something, but I wasn’t sure what that something was. I tried to ask her to point at what she wanted, but she just kept breathing heavily. I feared that if I left the room to go get her mom, she would be alone, and even though it was only for a slight moment, who knows what could have happened? After realizing that it was the only thing I could do, I frantically sprinted around the house looking for her mom. I told her that Linzey needed something but I didn’t know how to help her. Her mom followed me into the room, and I was relieved to see Linzey in the same position as I left her, heavily breathing away. It was almost as if a mother read her daughter’s mind. She knew exactly what Linzey wanted. After rummaging around in a bedside drawer, she pulled out a clear syringe, filled with a liquid form of morphine. I turned away as she emptied the liquid in Linzey’s mouth, drop by drop, drugging away the pain. All of that time I had just spent with Linzey, she was suffering, and I had not even realized it
During both moments, the present and the one described above, I am experiencing pain. Currently, I am experiencing the same physical torture that Linzey was so familiar with. I am building up a tolerance to morphine, and thus must take higher doses every day for it to be effective. Side effects of this medicine include a swollen red face and itchy skin. I am on even more medicine to counter these side effects, each of which have side effects of their own. When I recall this one particular snippet of my time with Linzey, I experience a much different type of pain, one of hopelessness and fear. There was absolutely nothing I could do to help my friend. Linzey passed away before I was able to visit her again.
I was planning to go to San Antonio with my mentor tomorrow to present some psychology research that I’ve been working on for an entire year, but that now seems impossible. My situation, unlike Linzey’s is merely a waiting game, a test of my strength and patience before my white blood cell counts rise.
Oh, Gabi...I'm so sorry to hear of the pain you're going thru!! When I hadn't seen a post in a while, I was wondering how you were doing!! You're in my prayers, envisioning happy little white blood cells growing in numbers, knowing the side effects from these drugs will be short-lived (even though it seems like it's taking forever!!). Thanks for sharing your thoughts! You are an incredible writer!
ReplyDeleteYou are so awe inspiring!
ReplyDeleteYour aunt Raleen in SA gave me your blog address.
Never have I seen so much strength. Just know that there are people a world away that are thinking of you!
Gabi,
ReplyDeleteI am so sorry that you have to fight so hard. Please know that you are in my thoughts all the time and I know you will get through this. There are so many people rooting for you and sending positive energy your way. You are such an amazing person. I am sorry about the San Antonio trip but I am sure that you will have other wonderful opportunities ahead of you. There is always a positive - sometimes we just don't get to find out what it was until later. Take good care of yourself.
Keep holding on!
ReplyDeleteGabi,
ReplyDeleteHow is it possible for you to write so eloquently while you are suffering such pain? It's testament to your strength. The days must feel like endless reruns of nightmares, and I hope this phase passes soon. It's just not fair!
I'm struck by two descriptions of your pain. In one you mention hopelessness and fear, which are easy to understand when you are barraged by unrelenting pain. I am inspired, though, by your closing lines, full of wisdom: "...a waiting game, a test of my strength and patience." Yes, you are being tested, and you will rise victorious! Look at what the chemo is doing to you...and then picture what it's doing to the cancer. Chemo will ravage those cells! Here's a quote to consider when you are feeling hopeless. "Hope is like a bird that senses the dawn...and carefully starts to sing while it is still dark." (anon.) Gabi, know that the dark will give way to a new dawn and you will rise with new strength.
Much love,
Rhoda
Hey Lady,
ReplyDeleteI am speechless, which I must say is the 1st time in my life. I cannot begin to write anything to you after reading your most amazing blog. We will talk when you have the energy to call me and we will yak in person or on the phone. Believe me there will be better days ahead. I love you and think of you constantly! My best thoughts and wishes for you are always in my mind. Life can really suck sometimes and this is definitely one of those times. Again, I do not know how to express how I feel for what you're dealing with and feeling. Again, when you are up to it, call me and let's talk. No pressure darlin'. Keep up your incredible spirit. That can never be taken away!
I love you,
Liz Dennis (HPHS)
Gabi,
ReplyDeleteI want to share a little story with you. Do you remember your Creation Station book from 5th grade? You and Kathryn wrote it and dedicated it to Mr. Buti ("for teaching you everything you know about bowling") and to me ("for thinking your book was simply hilarious" - which it was). I'm sure you haven't forgetten the classic "Blue-bootied Babboon." Do you know I still have it? And when we had our son, I moved it from my classroom library to our home library, where I hoped Cormick would someday think it was really cool that his parents had a book dedicated to them.
Well, now that he is 2 and loves to read, he discovered your book. A few months ago, he opened to the title page and pointed to your picture, "Who's that?" "That's Gabi, she wrote this book. She was my student," I said. He replied, "Gabi's nice. I like her," and got a look on his face like he does when he's flirting with older girls. Then just a couple days ago, he found the book again and asked about you. I told him you were sick and in the hospital. He gave your picture a kiss and hugged the book to make you feel better. "Gabi ok?" he asked.
I hope you feel the love and prayers from our little boy, and from us.
Miss Kasallis & Mr. Buti
Gabi Gabi Gabi,
ReplyDeleteI can only imagine the pain you are describing. Let me just say, I was sooo happy to talk to you on Friday and hear your voice. We really missed you at sectionals, and Ady and I will have to indroduce you to the two sophs on the sectionals team when you come back :)
much love,
Abbey
Hi Gabi,
ReplyDeleteGot through all your postings. I'm sorry to read you're going through the pain & suffering of cancer. Even though this is a fight for your life that you are battling, remember that you are not alone, that all survivors are with you. Thanks again for sharing your experiences. Wish I could fight this for you. Lots of hugs to you & to your friends & family.
I just want to hug you, Gabi and hug away all the pain =(
ReplyDeleteLove love love,
Ashley
hello gabi,reading your story was like you talking about me..all your pain was my pain l was feeling everything you wrote the mouth ulcers,the morphine..l was hullucinating l was in my hospital bed and l could hear my dog scratching the door to come in,l actually snapped out of it for a second by my own voice telling the nurse to let my dog in,l thought now l've totally lost my mind.So then we put the dosage down l was flying too high...l just love you already..hang in there my love..l am here and look forward to reading more of this adventure that we are on...sometimes when l was in so much pain l kept thinking it has to go away eventually and it did..l was one of those people who had to have every side effect possible in the book and more; l think l pressed that bedside buzzer at least 100 times a day asking the nurses what's this or is this normal or can l ask a silly question and they looked after me like a princess l even had the dinner lady sitting on my bed telling me stories,l treasure every person who helped me get through my leukaemia and all my friends too l was in hospital 6 months and l also caught a hospital bacteria called vre and then cmv, l was isolated from everyone so l used to stand at door and watch people walk by and l smiled and l remember saying oh!look at all those poor sick people with no hair l was in denial until l lost my mop of hair then reality set in.yes Gabi,l have many stories but l know you will too and you will tell them to many people because your an inspiration to people who have yet to go through this adventure like us...we are not the first or the last..but for the future our stories will always remain in our hearts and in the hearts of people you have already touched...A big hug from me to you..Theresa W.
ReplyDelete